Our tapestry

Most people don’t know that non verbal autistics are of sound mind. Upon seeing us do moves like flapping, rocking, or moaning, they assume we are unintelligent. People then proceed to talk about us as if we don’t understand what they are saying. This means we have to endure horrible untruths being said about us without being able to respond. No wonder we run off to escape elope. No one can just sit and endure that without blowing a gasket.

Sometimes people ask mom questions about me like:

“Is he low functioning?”

“Is he in regular school?”

“Will he be able to live alone someday?”

“How do you cope with his autism?”

Or best yet,

“Is he violent?”

These are all both assumptions about autism and questions I could answer myself, if asked. Sometimes mom gives the wrong answer but she doesn’t mean to. Other times I want to answer but the person doesn’t understand that I need additional time to spell my response on the letter board.

Aligning my way of communication to the verbal order of doing things is alarmingly hard. At times I feel like I’m the only one expected to change my way of doing things, but that will never work, and isn’t fair either. Anyone would  think that it is just to make sure that someone using a wheelchair to get around should have a ramp, or a wide door so they aren’t excluded from places and from people. Autistics that aren’t verbal need accommodations too so that we aren’t excluded. Sometimes that requires people to make more effort than they are used to, but the work pays off when we have a woven tapestry of everyone strong together.

Let’s make it happen.

Love, Autism Henry

image

Poster about me I did for school.

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6 thoughts on “Our tapestry

  1. Hi Henry,
    Do you have any ideas on how to find out the best way for a non-speaking autistic tween to communicate? I have a nephew who is on the spectrum. He loves Disney, and is echolalic. I live far away so I don’t know much, but I want to give info to his grandmom for when he visits. I don’t know what therapies he might have or tools he uses when he’s not visiting. But I’d love your thoughts on what to try. Thank you so much for sharing your thoughts!

    Like

  2. Henry, you speak so well. I now understand what it must be like for you. This is important for me because I have a young grandson who is autistic and speaks very little. I have always known that he is smart but since he cannot write or type our communication is limited. I have even more hope for his future. Thank you for your article. From Grandma Barb.

    Like

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